Being a carer of someone with Cystic Fibrosis
Cystic Fibrosis is normally diagnosed within the first few weeks of birth with treatment beginning immediately. The treatment includes inhaled medication to break up the mucus, physiotherapy and breathing exercises to assist in clearing the mucus from the lungs, oral and inhaled antibiotics to keep lung infection to a minimum, digestive enzymes taken with food to allow absorption of nutrients and additional vitamins and high calorie supplements.
The specialist advice and care required for Cystic Fibrosis is not available in the Channel Islands so regular off island travel becomes a challenging feature of family life. Some hospitals on the mainland will have a Cystic Fibrosis team which includes respiratory consultants, specialist nurses, physiotherapists, dietitians and psychologists to assist with the care and support.